First Author, "Building a Strong Privacy and Security Framework for Personal Health Records" by the Center for Democracy & Technology. (July, 2010).
Author, “Protecting Sensitive Health Information in the Context of Health Information Technology” by the National Partnership for Women & Families. (June, 2010).
For New York State and the Health Information Security and Privacy Collaboration (HISPC) Project.(2009):
• Primary Author, “Better Information Means Better Care,” brochure on eHealth for New Yorkers, available in 14 languages. Click here to download. (2009).
• Primary Author, “Guidance for Developing Educational Materials about Health IT and Consent for Consumers.” Click here to download. (Under “Full Toolikts”).
• Primary Author, “Guidance for Developing Consent Policies for Health IT.” Click here to download. (Under “Outreach and Measurement”).
• Co-Author, “An Inventory of Materials Related to Consumer Engagement in Health IT.” Click here to download. (Under “Planning Resources”)
Co-Author, “Stronger Protections for, and Encouraging the Use of, De-Identified (and ‘Anonymized’) Health Data,” the Center for Democracy and Technology (Short version and long version) (June 2009).
Co-Author, “HIPAA and Health Privacy: Myths and Facts” by the Center for Democracy and Technology. (January, 2009).
Co-Author, “Overview: Best Practices for Employers Offering Personal Health Records (PHRs)” For the Employers’ Working Group on PHRs, including IBM, Wal-Mart, Intel, Dell, Pitney Bowes, Fidelity, Google, and others. (December, 2007).
Primary Author of section on engaging consumers. “eHealth Initiative Blueprint: Building Consensus on Common Action” By the eHealth Initiative. (October, 2007).
Co-Author, “Building Consumer Trust into Health Information Exchange,” Journal of AHIMA (American Health Information Management Association), (November-December 2006).
Co-Author, “The Common Framework: Overview and Principles,” published as part of The Connecting for Health Common Framework: Resources for Implementing Private and Secure Health Information Exchange. The Markle Foundation. (April 2006).
Co-Author, “Exchanging Health Information: Local Distribution, National Coordination,” Health Affairs (2005).
Managing Editor/Contributing Author, “Achieving Electronic Connectivity in Healthcare: A Preliminary Roadmap from the Nation’s Private and Public Sector Leaders” The Markle Foundation. (July 2004).
Contributing Author, “Telemedicine Report to the Congress” US Department of Commerce and the US Department of Health and Human Services. (January, 1997).